Quality of Life of Adolescents and Young Adults with Cancer at Gustave Roussy Institute: The Role of Management in Enhancing Care and Ensuring Performance.
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The Gustave Roussy Institute (IGR) is considered the leading cancer center in Europe. Since 2012, a multidisciplinary team dedicated to adolescents and young adults (AYAs)-known as SPIAJA-has been developing a comprehensive care model for patients in this age group treated at the IGR. This mobile unit, integrated into the pediatrics department, collaborates with several adult care departments and offers a wide range of specialized services. Based on both interviews and observations, this qualitative study highlights the role of leadership as a catalyst for overcoming barriers and improving interprofessional collaboration, which appears to have a positive impact on the quality of life of AYA patients. However, the identified barriers and challenges highlight certain performance limitations when this "managerial culture" is not implemented at all levels of the institution.